HOW WE CARE
Great communication for a good cause.
World Rare Disease advocacy starts at the community level
What does meaningful advocacy look like outside of the Beltway? There wasn’t much going on where I spent my childhood in the 1980s. St. Francisville, Louisiana (an infamously famous haunted town) was far enough outside the big city of Baton Rouge to be beyond the...
The Icarus Problem: How can innovators protect those who need care?
HOW WE CARE \ Vol. 1 Issue 2 \ November 2024 Medical devices, precision care, and a flu+COVID-19 at-home combo test are shaping the ways and places caregiving and medical care can occur, but are there enough guardrails in place? In this edition Publisher's Note: What...
Recent interesting, engaging, and (maybe) controversial research
40% of American adults are family caregivers, says RAND’s Hidden Heroes follow-up report Roughly 14.3 million adults are military or veteran caregivers, while an additional 91.3 million civilian caregivers support a wounded adult or an adult with an illness or injury...
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